Metabolic Support UK

Metabolic Support UK is the umbrella patient organisation for Inherited Metabolic Disorders, supporting thousands of families worldwide. Through the provision of bespoke support, working with healthcare professionals, raising awareness and funding research, the charity’s mission is to improve the lives of those living with Inherited Metabolic Disorders and their families.

Metabolic Support UK is launching a new app;  the‘UK heel prick test guide for Inherited Metabolic Disorders’. The app will be an interactive resource, providing consistent information for new parents on the six Inherited Metabolic Disorders tests via the heel prick test. Designed to reduce anxiety, the app guides families through the diagnostic processes, as well as advising what to expect following a positive diagnosis and the support available. The app consists of family stories sharing real-life diagnosis experiences, visual infographics and videos to clearly explain each of the disorders. The app has been designed and developed by students and staff at Coventry University, Professor Jim Bonham and Metabolic Support UK. If you would like further information please contact contact@metabolicsupportuk.org.

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